A Bittersweet Kind of Day

Today has turned into a bittersweet kind of day.  Today at 3pm, I finished my last regularly scheduled therapy appointment at the Duke Cancer Center.  What had once been weekly for the first 3 months, then bi-weekly for a couple of months and since late June, once every three weeks, came to an end today.  After discussion with Jennifer Harsh (my therapist), we decided that maybe this was a good time to stop the regularly scheduled visits and just go with an "as needed" approach.  It comes at a good time for her because as of today she is FULL TIME at the DCC.  However, full time means that approximately 75% of her time will be devoted to research and 25% to counseling/therapy sessions.  This means that if I'm having a particularly hard time or feel the need to reach out to her, her schedule of patients will be far less and thus her schedule much more flexible to see me or just talk on the phone.  While I'm glad that we both feel I've reached the point where this will work, it also means letting go of one more thing that bonded me to Joe, the Cancer Center itself.  After 2 1/2 years of almost weekly visits, it became part of a comfortable routine.  After his death and I began counseling, it remained part of my routine.  I felt comfortable going there.  I even have some good memories there:  when we got good news of no growth but tumor shrinkage; seeing Dr. Zafar & Leigh Howard (who I still adore and admire so much); the familiar and caring faces of the various nurses and staff.  They all became a little bit of an extended family.  One that I have missed, but with my counseling sessions, even though I didn't see them often at all, I knew they were there.  Today, although I can go back anytime I feel it necessary, I moved one step further away from them.  That is what is bittersweet and makes me a bit sad.

After saying goodbye to Jennifer, I got on the elevator and had a good cry on the way down to the 1st floor and on my walk to the parking garage.  I just felt like I was letting another tiny piece of what Joe and I shared slip away.  I know it probably sounds silly to others, but even though it is a very big positive step forward for me, I couldn't help but be sad.

The Duke Cancer Center (left)    Duke Medicine Pavilion (right)

I can't say enough about the care that Joe received and then I have received at the Duke Cancer Center.  It is a world class facility, but even if it was in shambles, if the same employees were there, you couldn't be in better hands.  I owe you 2 1/2 years that I got to spend with Joe that I probably would not have had otherwise.  I also owe you 7 months of helping me regain my footing when it seemed like the ground was crumbling beneath my feet.  If a small crack reappears, I know where to turn.  Thank you.

February 21, 2012

Today I made what I consider a giant step. I arrived at the Duke Cancer Center a little early for my counseling appointment so I had Leigh Howard paged. I had not seen either Leigh or Dr. Zafar since Joe's death although I had spoken to each of them. I had wanted to see them because of how important both of them were to Joe and still are to me. Although Joe fought really hard against the cancer, I attribute much of his ability to have survived for over two years to the care he received from our oncology team. They are both such wonderful people as well as incredibly gifted medical professionals. For more than two years they were part of our lives. We saw them weekly. A close relationship developed between us. I have missed them but knew it would be difficult to see them again and although I have been to the DCC weekly, have not had the courage to go up to the third floor to see them. Today I found that courage and I saw both of them. Although it was a tearful visit on my part, it felt good to visit with them, talk to them and express my gratitude. After that I went back downstairs for my counseling session.

Today when I got home I pulled all of mine and Joe's tax information together so that our taxes can be done. I also pulled out all the cards that I received following the news of Joe's death and the memorial service. So many people to thank for thinking of me and our families. The Hardy family, Virginia Joines, Julie Hilton Steele, Tim & Netta Ketterman, Erin Juliano, John Belch, Marcia Fleishman, Wes & Cathy Anderson, Ruth Heath, the Russell family, Hal & Deanna Bruen, Phil & Pat Hoffman, the Potratz family, the Duke CC GI Oncology Program, Barbara Johnson, Patty Kranich, Iris & Mike Colvin, Bill & Fredda Umphlett, Donna Clelland, the Minnick family, Angela Teachey, Desiree Davis-Omburo, the Simpson family, Marilyn Kennedy, Mary Nell Thomas, the Hume family, Bob & Mary Anderson, Amy Daws, Cheryl Crane & David Murray, Nancy Glascow, Jennifer & Rob Williams, Kent Parks & Randy Moore, Don & Doris Click, Michael & Missy Fox, Stella Honeycutt, Valerie & Leroy Hurd, Shawn Morgenlander, Lennie & Dianne Rosenbluth, Becka Huckabee, the Shade family, Ray & Judy Peede, Charlotte Margolis, Michele Burris, Laura Delauney, Stephen Melott, Jane Albright, Larry & Angela Tollen, Beverly & Talmadge Skinner, Mark Shelton & Michael Gosch, Katy Lupton, Jan Jackson, Donna Lloyd, Wayne Dedrick, John & Glynnis Cowell, Mary Kay Pendergraph, the Piscorik family, Bert Elliott, Mary Thomas, Durham Regional Assoc. of Realtors, the Clemo family, Bill Lupton & Sandy Okazaki, Ruth Patterson, Jenny & Bill Krieski, the entire Quest group at PGUMC.....and many have sent multiple cards & thoughtful gifts. Meals with the Minnicks, the Frys, the Clarks, the Levines, the Lawsons, Lucinda, Mike, Jeff, and Artie. Phone calls from Rob & Lola, Mark & Jill, Bill & Sandy, Scott & Ken and others. Many others have helped with a variety of tasks. These people along with other friends and family are a major force in what is helping me get through each day.

Tonight after seeing Leigh & Yousuf; a counseling session; organizing the taxes; along with a day at work, I am tired! It's only 6:45 pm but I hear my bed calling. After I call Joe's mother, I think I will turn in early. I have a feeling of accomplishment and it feels good.

Thank you to EVERYONE who continues to pray for me and remember me in their thoughts. I am humbled and most grateful.

January 28, 2013

Do you ever have one of those days? You know the kind I'm talking about. Where you just aren't "with it"? Today started off with waking to the alarm after a rough night of lack of sleep. That was followed by discovering I was out of coffee at home. Then off to work to discover that for some reason my hands were shaking. I tried writing a name on an envelope only to discover it looked like chicken scratch. Solution?....I just printed a label instead. The rest of the day was uneventful and then during lunch I spent the time setting up BillPay. Changing bills from Joe's checking to mine. Not exactly relaxing. But I did what I needed to do the rest of the day and put in my full 8 hours at work. However, the moment I stepped out the door of the office it felt like an anvil was dropped on me. I suddenly had an overwhelming urge to cry, and I did, all the way home and then some. It wasn't until about 30 minutes after I got home that I was able to stop. My sister called and I calmed down. I called and spoke to Joe's mother while I was heating some soup for dinner. She continues to have trouble dealing with the loss of Joe. We have that in common.

I'm a little worried about going upstairs tonight. You know the saying "rainy days and Mondays always get me down". Is that going to be me? Last Monday scared me into counseling. What will this one do? I'm already scheduled to see the counselor tomorrow, so that base is covered. Another trip to the Duke Cancer Center. I want to see Leigh and Dr. Zafar but I'm scared of that right now. One day soon. Maybe an early night is in store. Couldn't hurt, right?

I have to stop eating so much. At this rate I'll be needing to buy new pants soon. That isn't in my budget. Sad and fat. That's just pitiful.

This Weeks Draws to an End

It's Saturday night and this week is drawing to an end. And for the first time in many, many weeks, it has been a good one. Joe has not had a single fever, has felt good every day, has not had any real issues with his antibiotic infusions or tablets, had a good choir practice, good doctors appointment and NO hospital visits! All in all, I'd take duplicate versions of this week each and every week.

At this week's oncology appointment, Joe and Leigh decided that when he resumes his chemo, he will be doing the 1 large dose every three weeks. Since we are going away the week of Thanksgiving, he will start on the Monday after we return. The reason for the delay rather than starting the week of Thanksgiving: he will have to go to the infusion center the day after he gets his chemotherapy treatment to get a shot to boost his white cell count. Since we will be in mountains, that would be hard to do, so we will just wait another week.

Joe has been on oral antibiotics three times a day since he was released from the hospital and will be on them until next Saturday, November 17th. Also since his release he has been infusing a liquid antibiotic once a day for an hour through his picc line. That will end this coming Wednesday, November 14th. After his infusion that day, he will have the picc line removed. Dr. Zafar doesn't want anything foreign in him for any longer than necessary. The home health nurse will remove it after the infusion. Joe is really looking forward to that coming out. Wrapping his arm in plastic wrap and press-n-seal to take a shower is getting really old.

But this post isn't about complaining (which I know seems to be all I do sometime). Since the first of November, many Facebook friends have been posting something that they are thankful for each day. So with that in mind, I thought I might list some things I am thankful for as well.
1- I am most thankful for Joe. For the last 15 years he has given me love and strength. He has taught me how to be a better person and brought so much joy into my life that I couldn't possibly ever repay him.
2- I am most thankful for my family. My sister Phyllis, her husband Woodie, my nieces Aimee & Sara and my nephew Wayne. My brother and sister-in-law, Bill Lupton & Sandy Okasaki. They are a constant source of love and support. I know that I have sometimes taken them for granted but I truly appreciate how much they have done for me and for Joe. They love us unconditionally and show that love all the time.
3- I am most thankful for Pleasant Grove United Methodist Church. Everyone from our pastors to the staff to the choir to the general membership have been caring, supportive and loving in every way. I never thought such a large group of people could find a place in my heart in such a big way.
4- I am most thankful for my friends. Joe and I have wonderful friends who reach out to us all the time. I work with an incredible group of people who are always there to lift my spirits when I am down and to help me smile when I didn't think I could.
5- I am most thankful for Dr. Yousef Zafar & Leigh Howard. Our oncology team has been with us on this journey for 2 years and they have always made us feel that we are priority number one. They inspire us with their optimism and positivity. We have had 3 different nurses during the last two years: Minoka, Mark & Darryl - All three of you are treasured and both of us appreciate everything you have done for us.
6- I am most thankful for our radiologist, Dr. Czito; our surgeon, Dr. Tyler; and all the nurses and staff who helped us during those trying times.
7- I am most thankful for the nurses and staff of the 9th floor of Duke Hospital. We have made 6 trips to the 9300 wing. Every time the care that Joe and I received was incredible. Every nurse was caring in such ways that one would not think possible. They looked after Joe day in and day out, helped me day in and day out, comforted me on those bad nights, made me smile or laugh on those really bad nights and always treated us and our relationship with the utmost respect.
8- I am most thankful for my health. Even though I have always been the "sickly" one with all my allergies and aches & pains, I know what real sickness is.
9- I am most thankful for the readers of this blog. You take the time to read my ramblings because you care about Joe and about me. You take the time to comment and send words of support. You say prayers. You offer help. I write this blog as a way to help myself deal with things. I write to help my sanity. I write it with no expectations of it being read, but you do read it. I thank you.
10 - This one will seem strange. I am most thankful for the cancer. Don't get me wrong, I wish I could snap my fingers and it was gone. I wish this terrible disease had never reached out and touched Joe. I wish cancer of all types could be eradicated. But it is here and it is a part of mine and Joe's life. But even though physically it has done it's damage, it has not defeated us in anyway. What it has done is bring me and Joe closer. It has changed our relationship for sure, but for the better. It's hard to argue over the petty stuff (although Joe will probably disagree that I still argue over petty stuff). We have found a better level of understanding of one another, a better understanding of what we mean to each other. Simply, we are better together now than before. Three years ago we were plodding right along, taking many things for granted, maybe even taking each other for granted. We don't do that any more. Now we treasure every day and every experience. Cancer gave us that rather than taking something away. For that I am thankful.

Thank you for your prayers and words of support. I thank you and appreciate you taking this time out of your busy day to read this post.

P.S. I have received some very nice comments to this post from some highly cherished friends. Here is but a sampling:

"YAY!!! You know it's a good week when there are no fevers and no hospital visits!!! Enjoyed your blog post. Hope you get to savor the delight of a fever-free/hospital-free week. See you tomorrow." Allana

"What a beautiful post you wrote tonight. WOW! That is awesome to be able to be thankful in the midst of all you two are in the midst of! Very impressive! What beautiful people you are! God bless you both! Fondly," Fredda

"I am thankful that Joe has been fever free and hospital visit free this week.
I am thankful that Rob and Joe met on that first day at uncg in 1974.
I am thankful that you and Joe call us friends.
I am SO thankful that you came to Connecticut to get married and to renew/cement our friendships.
I am thankful I have met all the wonderful PGMC folks AND got bread!
I am thankful that you both get tender loving (and skilled care) at Duke.
I am thankful for technology like skype, imovie, iphoto, etc that helps bring us closer in funny Cheeto kinds of ways...AND in ways like seeing Joe's wonderful piano concert!
I am thankful for the blog that keeps us up to date.
I am thankful that we had such a WONDERFUL visit with you this summer. We still talk about it.
I am thankful that we have things to look forward to sharing together.
Hugs!" Lola

"Jeff, You are an amazing and gifted writer. When I read your words, I can just hear you talking – like we are sitting and chatting in person. That is a wonderful talent. So I am thankful for your blog. I love you both so much and I want to stay informed on how things are going. I want to know how you are feeling and how Joe is feeling. Through your blog you keep me in the loop. Dave or one of the girls will ask me once or twice a week if I have any news on Joe – has Jeff updated his blog, particularly when Joe is in the hospital. So I’m not only in the loop, I have become part of the loop of information and love and prayers. Love," Cindy H


"What a beautiful post! Indeed, dire illness often brings so many issues into their true perspective. It's the fire that can either destroy or burn out the dross from a relationship; I'm glad you two have come through thus far with a stronger bond." Jean

Port Removal in Progress

They (the powers that be at Duke) have decided to remove the port that Joe had put in back in August.  This removal however is just a precaution since no bacteria or infection has yet to be traced to the port.  Whether he will have another port put in on the other side of his chest has yet to be determined.  The chemotherapy that he is on can be done via IV.  That isn't optimal, but it can be done.  They came for him for the surgery around 8:00am.  It is supposed to take around 1 1/2 hours but he will be quite sleepy and loopy afterwards (just like when they put it in).

He didn't have any fevers last night.  They started him on fluids around 6:30pm and then antibiotics around 8pm.  The antibiotics run for 30 minutes every 6 hours.  He ate well for dinner last night but was restricted to no food or drink after midnight for this morning's surgery.  They drew blood for cultures around 8:30pm and also needed a urine sample for culturing.  He slept well except for the usual interruptions.  More antibiotics around 1:30am, vitals around 3am, more blood drawn at 5am and then the final wake up at 6:15am when his nurse (Sarah) was in for her last check-up before the shift change at 7am.

They have identified the type of bacteria, but thus far I have not encountered a native English speaking doctor to tell me the name so I could look it up.  The doctor on the floor that was in for about 30 minutes last night was of Asian origin and although she said the name several times, I couldn't quite understand.  I didn't want to ask her to spell it for me, although I should.  I'm sure I can get the name from either Leigh, Dr. Zafar or Jason at some point today.   Speaking of Jason (Joe's former middle school student who is now a nurse in the Duke Cancer Center), he surprised Joe with a visit yesterday evening.  He had found out from another patient of his that reads our blog that Joe was in the hospital.  So he looked up the room (on the blog) and walked over to visit.  Just goes to show that once Joe has taught you, he has made an impact on you.  It also goes to the character of Jason.  He's very caring and dedicated to his profession and goes above and beyond the call of duty.  Thank you very much Jason.  It really lifted Joe's spirits to have you come by, as well as mine.

So today, I'm at work awaiting word once the surgery is done.  I'll keep pestering Joe on his cell phone, room phone and iPad until I get a response.  Or I can break down and call Duke for information.  I know this is not a major procedure but I still worry and won't take a deep breath or sigh of relief until I know he is out, conscious and talking to me.

Thank you for the prayers and words of support and concern.  We need a little extra right now and everyone is coming through.

9:31a.m. Update:  Joe is out of the surgery and eagerly awaiting his breakfast in his room.  It was painless and he is doing fine.

9:57a.m. Update:  Joe called again after his breakfast.  The oncologist on the floor came in (Dr. Riedel) and told Joe that the plan as it stands right now is to keep him on the antibiotics.  Apparently, the bacteria that has been identified has only been indentified by the family of bacteria, not the specific bacteria.  Until that is done, the general antibiotics will continue.  Once they zoom in more specifically, he will change antibiotics.  When released (earliest would be Friday), he will be on antibiotics at home for 2 weeks (no chemo).  They are doing another round of blood cultures this morning.  When they removed the port there was no sign of infection in the port site but they did flush it really well as a precaution. 

Bacteria, Bacteria Please Go Away

Joe got a call from Leigh Howard, our NP at Duke before 8am this morning that one of the blood cultures that were drawn yesterday has already (in less than 24 hours...which is really quick) started bacteria growth.  This means that once again there is bacteria in his bloodstream.  What this means is a trip to the "Duke Spa" i.e. hospital once again.  Most likely during this stay they will remove his port.  Although, the growth came from the sample that was drawn from his arm, not the port.  Time will tell as to exactly what they will do.  I am at work, early I might add and have already entered a listing.  Joe is busy getting his hospital bag together, calling the vet to get more drugs for Dolly and ultimately waiting for the hospital to call and tell him to come to Admitting when they have a room for him.  Looks like we will be seeing our friends on 93 again really soon.  As much as I hate that he is going back in, I am so very hopeful that they can pin-point the problem and get these fevers under control once and for all.  My nerves & emotions have been all over the place the last couple of weeks.  Until the call comes, I will wait at work and Joe will clean himself up and wait at home.

Cancer is a huge pain in the a**!

At Duke now waiting in admitting for someone to come get him to take him up to the room (3:30pm).

Wow! The fastest time in admitting ever. It's 3:40 and we are already up in the room (9307)

The Weekend That Was and Then Today's Chemo

This past week as earlier written about, Joe’s brother Bill and his wife Sandy, came for a visit from Las Vegas. The best thing about Bill & Sandy visiting is that you don’t feel you have to entertain them. The purpose of the visit was just that: a visit. Time for them to spend with us and us with them. Whether it was laying around watching football on Saturday and arguing with Bill about the scheduling differences between Vegas and here (when he gets up and ready to watch College Gameday in Vegas which comes on ESPNU at 9am EST and ESPN at 10am EST, he gets to start watching it at 6am or 7am there). Of course he was up early on Saturday and fussing and moaning about the lack of the show until 9a.m. We had some good bickering over that. Then when the games start, I’m watching 2 in the family room (PIP) and he is watching one in the kitchen and has his computer up and running. Not sure if there was one on it or not. But then we argued about which was a better game to watch and so on and so on. It was a lot of fun. Joe has no football interest so it made my Saturday to get to bitch and moan with someone. Sandy meanwhile just kept commenting that this was what she had to deal with every Saturday. Apparently control of their DVR in Vegas is a big issue. Joe and I don’t have that issue. I get what I want, plain and simple. But we had a great visit.

The day before, Friday, Joe and Bill had driven to Wilson to meet their mother and sister at Bill’s Bar-B-Que for lunch. The lunch lasted around 2 hours, they had nice conversation, no confrontation and both left with a bit of a sigh of relief I think. It was the first time Bill had seen them since the “blow-up” in March and except for their Aunt Sue’s funeral, it was the first time that Joe had seen them as well. Truly the first time for each of them to see each other and have a conversation face to face. No issues were addressed, mostly in an effort to not cause any more conflict and keep Joe calm. He was a bit tired after the return trip so we ordered Randy’s Pizza and picked it up for dinner. I think all 4 of us enjoyed that and were able to just relax around the house.

Besides Saturday’s afternoon football, there were naps by everyone. Me and Joe on the couch in the family room (it’s and L shaped sectional) and eventually Bill & Sandy upstairs. Later in the afternoon we all cleaned up and went out for dinner to our favorite sushi restaurant, Shiki Shushi at Homestead Market on Hwy 54. Once again we all enjoyed it and were home around 7:30 and then proceeded to watch the DUKE- UNC game on TV. Yes, I actually watched a Duke game. Football doesn’t have the same effect on me as basketball, mostly due to my complete lack of interest in ACC football (which I have historically considered a joke as far as being competitive with the rest of the conferences mainly the SEC and BIG10 – Let’s face it, the ACC sucks in football). But I digress. We watched the game downstairs up until UNC went ahead at the 3+ minute mark. At that point, I saw no need to stay downstairs and watch since Joe and I had to be up at 6am to get to church by 7:30am the next morning. Joe had already gone upstairs to prep for bed so I followed. However, I did turn the TV on upstairs, paused the picture and prepped myself for bed. By the time I was ready to climb in the bed, I popped on the iPad and checked the score on ESPN. The game was over, I knew Duke had won so I unpaused the TV and finished the game while remaining calm. I didn’t even wake Joe. Of course had it been basketball I probably would have been loud enough to wake the neighborhood. But it was just football. Fun night just the same.

Sunday brought our early morning trek to church for the 8:30am and 11am services. I got a lot of religion on Sunday by attending both services. Usually I am just recording the 8:30am service and have my headphones on up in the recording loft listening to music or some show on Netflix streaming but since I was assisting with communion at the 8:30 service, I actually sat in the pews. It did however give me a chance to sit with Dave & Kelsey and catch up a bit with them. I rarely get the opportunity so it was nice for a change and I always enjoy their company. The 11am service is the one the bulk of my closer friends at PGUMC attend so I felt I needed to attend that one as well so I could see those special people that have been so supportive of me and Joe. Besides, the choir was singing and I wanted to hear them.

After church we came home and the four of us went out to eat for lunch at Rick’s Diner (can’t go
wrong there) and then over to A Southern Season since that is one of Sandy’s favorite stores when
she visits. We were having a good time, Joe buying chocolate by the pound and eating it
(diabetic?????) while Sandy shopped for her favorite items that she has purchased on previous trips. She really likes that store, but then who doesn’t? During this time, Joe excused himself to go to the car saying he was tired. I should have just followed him on out but didn’t. When we did finish and I went to the car he was complaining of being cold but said otherwise he was fine. After stopping at Fresh Market for Pimento Cheese & Chicken Salad, he returned to the car having severe chills. I was not happy. We went straight home and I ordered, yes ordered, him to bed. He was still several hours out from being able to take Tylenol so he had to cuddle under the covers. When I took his temperature after making him some hot tea (which he never drank) it was at 103. So we waited the 2+ hours until he could have Tylenol. Why the wait, because unbeknownst to me, when we got home from church he took his temp and it was high and took some then. Had he just mentioned that he was running a fever, we would have done the afternoon different. Maybe lunch at Rick’s and then dropped him off at home. I could have taken Bill & Sandy to A Southern Season while Joe rested. But as he put it, “I didn’t want to ruin the afternoon”. So instead, he runs a massive fever getting everyone all worked up and upset. Not his smartest move. I was extremely angry at him for not telling me the truth about what was going on. He has promised over and over to tell me the truth about how he is feeling, but once again, he kept it from me. This has got to stop! Maybe my less than happy demeanor will have gotten through to him this time. Only time will tell. Anyway, we took Bill & Sandy over to the Marriott on Sunday night so that they can use the hotel shuttle to get to the airport today since we will be at chemo. It was a wonderful visit and I am so grateful to both of them for coming to visit. Even with the bumps, it lifted Joe’s spirits so much to see the 2 of them and get to spend the time with them. Sandy even spent quality time spoiling Dolly. Of course as we drove off from the hotel, Joe became very emotional. He loves and respects his brother so much and is so thankful and appreciative of the support that the two of them have shown us. The tears flowed as we went back home but mixed in with the sorrow for leaving, was a happy vibe that he had gotten to spend 4 days with them. We both just wish we could see them more often. But since our travel plans are somewhat limited by Joe’s treatments, it pretty much is put on them to travel here, so that obviously isn’t fair to them. But as long as we get a fix every year or so, we can manage.

The fall foliage outside A Southern Season

Joe is at the Duke Cancer Center as I type.  I have just finished Facetime with him during his doctor’s appointment.  Since his temp did get so high yesterday, Leigh has ordered some more blood work drawn for cultures.  103.1 is high.  So Joe is now heading back down to level 0 for lab work before heading up to the 4th floor for chemo.  Me, I’m just waiting for staff or someone to arrive here at the office, so I can leave to go meet him.  I had almost nothing to do here this morning except dodge leftover pumpkins from our office Pumpkin Patch this weekend.  We have lots of orange in the lobby (at least it is a color).

I made it to Duke around 9:30am, got my coffee and joined Joe in the chemo waiting room.  It wasn't a long wait before we went back to an infusion room.  Then we got a surprise visit from Dr. Zafar.  He came for two reasons: to ask if Joe would participate in a study (non-medical) and to inquire about the weekend fevers.  He was not pleased to hear about the teeth rattling chills and 103+ fever.  To say he was concerned is putting it mildly.  The have drawn blood for cultures already and we will wait the 48 hrs for those results but it is highly likely that they will remove Joe's port and put a new one in the other side of his chest.  This would have to be done 2 weeks apart, keeping Joe off treatment during that time.  Dr. Zafar was emphatic that the chills and such high fevers are not chemo related.  So time will tell on that front.  Today however, up in chemo, he is running a 100 degree fever again so they have let him take some Tylenol.  They'll be checking it again I'm sure.   

Unlike last week, Joe is awake and very talkative.  Not sure which I prefer; sleeping Joe or talking Joe. Talking Joe is keeping me from watching Netflix though, so sleeping Joe might win.

Construction on the Duke Expansion is moving right along.

I hope everyone has a great week and I will let everyone know if there are any "unfortunate" results from the cultures which would result in a possible "Duke Spa" visit....UGH!  Thank you for the prayers and words of support.  We are so grateful. 

Chemo Day Went Smooth As Silk

We couldn't have asked for the day at the Duke Cancer Center to have gone any better.  Maybe it was just an anomaly or maybe the powers that be were trying really hard to make up for the last couple of treatments but everything was on time.  However, it may also be that Joe's appointments were the earliest he has ever started.

Labs were at 6:40am (yes, ladies and gents, that is very early to be up and at the DCC), doctor's appointment at 8:00am (we've done that before) and then his chemo appointment was at 9:30am.  I dropped Joe off in front of the DCC at 6:30am and headed on to my office (another first, never been there at 6:45am either).  By 6:56am we were texting and Joe was already down in the food court eating his breakfast.  He checked in on the 3rd floor (doctor's offices/exam rooms) at 7:38am and at 8:15am we were talking via Facetime while waiting for Leigh Howard to come in.  She was in there very soon after and Joe checked in on the 4th floor (Chemo Infusion) at 8:52am.  I left work at 9am to head over to the DCC and arrived at 9:20am (traffic was a pain).  Joe had already been taken to one of the infusion rooms so the lady that always talks to me at the reception desk, escorted me back to Joe.  Of course I had stopped at the cafe and gotten my coffee- with employee discount - a sure sign I have been there too much!  Therefore by the time I got to Joe's room it was 9:35 and he already had his fluids hooked up and running.  Apparently, he went back at 9:30am on the nose!  That is a HUGE first.  Within 15 minutes they started his Benadryl and about 10 minutes later, he was getting sleepy.  He tried to watch last nights episode of "Revenge" on his iPad but it didn't take long before he was out like a light.

From there on for the next 2 hours, it was really exciting sitting with him as he was hard and fast asleep.  I guess if you have to have chemo, it's best to sleep through it!  He finally woke up around 11:30am, but only because he had to go to the bathroom.  I unhooked the IV machine and he started walking down the hall when the machine starts beeping because one of the bags has finished.  Since he was right next to the nurses desk, he joked that he brought the machine to them instead of having them walk to his room.  They turned off the beeping, he continued on to the bathroom and within 15 minutes of his return, his infusion was complete.  By 11:50 we were walking out the front door and into the rain (with a small umbrella) on over to the parking deck.  Joe handled the Benadryl much better this time and was steadier on this feet so I let him (yes LET HIM) walk instead of pushing him in a wheelchair like last week.  Also this week we had a perfect room next to the outdoor patio area for infusion (it wasn't very well thought out by the designers but is quite lovely).  Too bad it was raining the entire morning or I could have gotten a little sun since Joe was sleeping.

Hopefully this week Joe will react better and not have the fevers on a daily basis like last week.  Only time will tell as far as that goes.  But one thing is for sure, we will enjoy the extra sleep time in the morning!

Thank you for all the prayers and concern.  Joe and I are so blessed to have friends who care so much for both of us.



Good News, Bad News

Or not so great news, but not terrible news.  Trying to put a positive spin on today's doctors appointment at the Duke Cancer Center to get the CT scan results from Sunday.  The not so great news, at least a couple of the lesions on Joe's liver have increased in size.  The better news is that the tumor in the pancreas seems to have shrunk just a bit.  The growths in the liver are not large, but growth none the less.  Dr. Zafar and Leigh Howard were hopefull that the new 3 chemo infusion regimen would show better results and therefore he is switching Joe to another regimen.  Another reason for the change, all the fevers that Joe has been having.  Although they can't difinitively point to the chemo, they can't rule it out as a side effect.  Therefore it's on to a new treatment. 

Initially this one will be every Monday, about 2 hours of infusion time.  If Joe tolerates that well, then it can be administered once every three weeks as one 6 hour infusion.   So we will start with the weekly and possibly move up to the longer treatment.  Needless to say, once every 3 weeks would work better scheduling wise, but if he doesn't have a positive reaction with regard to side effects, then a massive 6 hour dose might not be a good alternative.  Only time will tell. 

Of course we are somewhat bummed.  But since it wasn't all bad news, we will just forge forward.  Joe seems to have taken it in stride (he usually does better than me).  One other positive aspect, no more home infusions.  So I won't have to go off and have a hissy fit when the home infusion nurse comes in the room Monday...because she won't have any need to!  I can't speak for Joe but I think he is just really tired.  Tired of bad news.  Tired of not feeling well.  I know that I am tired.  Tired of many things!

Many, many thanks for the well wishes and words of concern.  Your prayers and words of encouragement are truly helping both of us.

Oops, I Did It Again!

I forgot to amend yesterday's post to include the fact that Joe DID come home last night. He did have to wait until after dinner was served at Duke so he did at least get one more meal out of them. They have put him on an antibiotic for 5 days so we shall see. He did run a little fever this afternoon but a couple of Tylenol took care of it within an hour.

He has an appointment with Dr. Zafar or Leigh Howard on Thursday morning. A sort of "follow up & get CT scan results" visit. Not thrilled with the wait but I know they prefer for his regular oncologist to give the results rather than the oncologist on duty at the hospital. Nevertheless, it's no fun waiting. But I should focus on the positive. Joe is home, feeling well and had a good day. I'll take that and run with it! We even had a rainbow over our house this evening.

Never Count on Things Running on Time

The tone for Joe's chemo treatment was set relatively early today. I dropped him off in front of the Duke Cancer Center at 7:03 am this morning for his 7:20 labs appointment and headed off to my office to get my Monday morning work done, arriving by 7:15 am. Joe texted me at 7:28 that he was in the food court getting his Subway breakfast (still not patronizing Chick-fil-a). At 7:52 am he was up on the 3rd floor and checked in for his doctor's appointment. However, apparently Dr. Zafar had a meeting and Leigh was busy as well so his 8:30 am appointment turned into more of a 9:15 am appointment. When that happens, there is a cascade effect. 9:30 am chemo turned into a 10:45 chemo and the chemicals didn't start flowing until around 11:00 am. So at this point if the rest of the day goes as normal, we should be out of here around 4:00 pm. Still better than the post 5pm of last time.

Today's nurse, Holly, has been on top of things and we haven't had to listen to beeping long in between chemo changes.  Joe, as you can see doesn't seem to phased by anything yet as he is laying back watching The View.  All 6 bags of chemicals are hung and waiting for their turn.

The biggest decision today is what to have for lunch. And the decision was made at 12:30.....chicken fingers and fries. Yes, I know, that's my norm but Joe usually chooses something else, but today he wanted the same. So off to the Atrium Cafe I went. It's no short walk either, so at least I got some exercise in today! Neither one of us however could finish the chicken so we have a good snack for later tonight, or whenever. Don't you just love these interesting details? Just goes to show how boring it can get up here.

Right now I'm counting the drips of the Oxaliplatin. He has a nice rhythm....drip,drip,drip,
pause...drip,drip,drip, pause, drip,drip,drip, pause. The Irinotecan had more of a slow drip, pause,
drip, pause, drip, pause cadence. Not nearly as interesting. Maybe I'm loosing my mind? 2 1/2 hours to go!  The 5-Flu infusion ball has already been delivered so maybe that will get hooked up quickly after the Magnesium is through (that comes after the Oxaliplatin finishes).

Now that Joe's all fed he's ready to watch last nights "Treme" episode on HBO Go.  I insisted on the headphones because he had the volume at max,  which interfered with my Netflix viewing.  Not sure why I keep him company when he sits with his headphones on ignoring me.  I have to wave my arms to get his attention.

Joe and I have determined that we could live in a room the size of this treatment room since it has an attached bathroom.  The bath is huge so there would be plenty of room to add a shower.  There is already a sink, so we would just need a microwave and a two burner hot plate.  The counter by the

sink doesn't go all the way to the ground so we could have a refrigerator put under there.  Throw in a 

Murphy bed and a couple of more comfortable chairs and we would be all set.

Just think of the savings on parking and travel time to and from Duke!  As you can see, there is room to spare even with the hospital bed in the room and those things are huge!  I might have to repaint though and definitely get rid of the fluorescent lighting.

Joe finished up his treatment at 3:45pm and we made the trek to the parking deck.  That means that the Duke Home Health will be at the house on Wednesday at 1:45pm to disconnect the 5-flu infusion bottle and then Joe will have 11 days free before it starts again.  However, we were not home 5 minutes before the nausea took its toll and Joe fled for the bathroom (of course he had just taken a nausea pill 2 minutes earlier.  Isn't that always the case???).  After that trip he is now settling down on the couch not feeling very well, obviously.  On a positive note, at least it waited until we got home instead of in the car.  It's stacking up to be a long evening!

Thank you for all the messages of concern and support.  They are all greatly appreciated and needed.

P.S. I've finally reached my limit of what I can handle. I've had my hands in Joe's bloody belly when his wound vac failed, I've watched as staples were ripped from his stomach while thick wads of gauze sopped up infectious hematomas, I've watched him heave over the toilet numerous times...but tonight, he is coughing up big ol goobers and it is totaling grossing me out! To make matters worse, he's putting the tissues in his puke pan right next to me. GROSS!

'twas the night before......

...CT Scan results and there were lots of whispers, loud talking, television playing, typing and anything to detract from the elephant in the room--the results.  Joe had his labs and the CT scan on Wednesday morning.  Everything went fine and on time.  By 9am he was back home and relaxing with Dolly.  We haven't really talked about it but it's there, we both know it and the anxiety level just creeps higher as the night falls.

We did take an anxiety break Wednesday night and took a drive down the new 540 before the toll begins on Thursday.  I'm sure everyone is surprised at us taking such a thrilling adventure on the night before we get the scan results.  Yes it was an amazing experience.  We were both overwhelmed with excitement. We came back home exhilarated and astonished at all the fun we had.  Imagine, riding down 6 miles of highway without paying for it.  It's hard to match that when it comes to having fun!! :) (for anyone confused, that was filled with sarcasm).

But after a very long night, a VERY long mostly sleepless until this morning just prior to the alarm screaming in my ear, we're off to the Duke Cancer Center for the appointment with Dr. Zafar and/or Leigh Howard at 8:20 am this morning.

It may seem like it was a lonely walk for Joe over to the Cancer Center but I just had to hang back for the photo op.  I ran to catch up afterwards.  We're all checked in and waiting. 

The waiting is over and the results were anything but what we were hoping for.  Since the last scan 6 weeks ago, the tumor in the pancreas has grown approximately 20% more and is now at 3.8cm.  Also, several lesions have appeared on his liver, the largest of which is 1.7cm.  What this means, time to change to a much more aggressive chemo treatment.  First up, Joe will have a port inserted next Wednesday and then the first treatment will be Monday, August 13th.  No more of the 1 hr treatments.  The new procedure will last 5-8 hrs every 2 weeks with the addition of a 46 hr pump that he will go home with and then Home Health Care will come disconnect on Wednesday.  There are three drugs involved: Irinotecan, Oxaliplatin and 5-Fluorouracil (in case anyone wants to Google them).  The side effects will be more severe so we will just have to monitor and adjust accordingly.

Of course we are a little overwhelmed right now, and not in a good way.  It will probably take a few days or maybe longer for it to really sink in.  Numb is the word of the day I guess.  Joe has just gone back for some lab work in prep for next weeks port insertion and I'm sitting here typing and crying.  Strangely, here at the Cancer Center, that isn't unique behavior.

Joe came out from labs and we went downstairs to the food court so he could have breakfast since he hadn't eaten all day. A few more tears flowed from both of us down there as well.  It was while there that Joe had the realization that since he wasn't having chemo today he would have to pay for parking.  As if our day wasn't bad enough, now he has to fork over $3.00. 

To all those who have reached out to us with prayers and support, we thank you and hope you will continue to help us.  You are loved by each of us and greatly appreciated.

Round 1 of this Chemo Cycle is in the Books!

Today Joe had his first chemo treatment of this cycle. Although he was running a few minutes late for his labs (7:20am appointment and he got there around 7:25am) he more than made up the time. By 8am he had already had his lab work done and gone to the food court for his breakfast. However, rather than his usual Subway English muffin and Chick-fil-A, he opted for the muffin and a drink from Subway alone. No more Chick-fil-a. No more money spent at that particular business. The reason, in case you haven't seen, heard or read, their very public opposition to equal rights for gay persons. See Chick-fil-a President Dan Cathy's comments here.

Anyway, although the morning diet was different, he made it to the doctors office prior to his 8:20am appointment time. By 8:40am, he was done with his visit with Leigh Howard, and on his way up to chemo. However, his chemo appointment wasn't until 10:30am, BUT he was in a chair waiting for his infusion by 9am. Not bad! Running 1 1/2 hours early. By 10:20am, he was done with his infusion, out of the Duke Cancer Center and on his way to the car. Now that is the beginning of a good day! But let me back up to his appointment. Since we were on vacation last week, coupled with the move to our new office, my week thus far at work has been slammed so I couldn't accompany him to his appointment. Therefore, it was another "Facetime" appointment. As soon as Leigh came in, Joe rang me up and I was able to ask questions and see/speak with Leigh and Joe. His lab work this week was all good. White & red blood cell counts good and neutrophil count was at 4100. Good numbers to start this chemo cycle. And Joe even got his favorite chemo nurse today, Brenda. All in all a good day of chemo.

With his early "release", he was able to get home and spend some time with Dolly, meet Mike for lunch at Chili's, meet Jill at Tutti Fruiti and then a trip to Sam's before coming home and baking cookies this evening. Aimee and Sara are coming up tomorrow morning so we'll get to spend a little time with them. Sara has a softball tournament in Cary this weekend so it is a perfect opportunity to get to see them. The cookies are being baked under the guise that they are for them, however, we have already consumed half tonight. Joe asked me to mention while speaking of baking the cookies, that everyone needs to know how wonderful parchment paper is. He say's he wishes he had known about parchment paper 45 years ago. Yes ladies and gents, he has been baking since he was 10 or 11. And his mother was surprised he was gay???? Go figure. His biggest disappointment in his childhood was that he never got an "Easy-Bake Oven" for Christmas or his birthday.

As an FYI, I've purchased a number of purple "Fight Pancreatic Cancer" rubber bracelets/wrist bands (purple is the pancreatic cancer color). If anyone is interested in one, let me know. I would love to see our friends wearing them in support. The proceeds of my purchase go to pancan.org, a pancreatic cancer research and support organization.

We thank everyone who continues to express their support to us and say prayers for Joe. Regardless of everything that we are dealing with, we feel so blessed by the people around us who help us remain positive. We thank each and every one of you.

Decisions, Decisions

Tomorrow we have a doctors appointment at 9:20am with Dr. Zafar or Leigh Howard at the Duke Cancer Center. The reason for two doctor's appointments in a row is that we are to give the doctor Joe's decision on what treatment he wants to proceed with due to the growth of the tumor revealed in his last CT scan. Last week Dr. Zafar presented two options. Option 1: continue with his current treatment and have another CT scan in 6 weeks (which would be earlier than his normal schedule for scans) or Option 2: Change the treatment now to a more aggressive type of chemotherapy that unfortunately would have more debilitating side effects. I won't go into what some of those side effects are, but lets just say they would not be pleasant, especially for Joe. If we go with Option 1, then depending on what the scan in 6 weeks shows, we would re-visit the idea of changing his treatment. Meaning, if the tumor has continued to grow, then we would switch to the new treatment. If there was no growth or minimal growth, then we would stay with his current treatment. We have thought about it since last Thursday and have come to a decision to stay with the current treatment and have the earlier CT scan. However, we have lots of questions about the other treatment so we might as well go ahead and ask all of them this visit in the event we have to change in the future. Better to be informed ahead of time rather than get blind-sided by something.

We didn't come by the decision lightly. Part of me would like for them to throw the biggest nastiest hardest form of chemo at the tumor and squash it. However, the rest of me knows what that would do physically and emotionally to Joe. The side effects would be horrible. I don't want that and I'm sure Joe doesn't either. Maybe some people will think this is not the right decision, I even question it myself. But nothing is guaranteed. There are no guarantees in life. That we learned in November of 2010. But enough of the downer talk, right? One solid reason for our decision is that the markers from the labs done at the time of the scan were good. No real change with them. Another reason, although I respect those professionals who read the scans, no one is perfect and I would like to have another scan done earlier.

We got a dose of what we might expect from a change in Joe's chemo treatment this past week. Joe started having stomach pains on Friday evening along with running a low grade fever. This continued on into Saturday. That day pretty much was a wash as both of us just laid around the house. I did manage to leave the house twice, first to get lunch and then dinner. Joe slept and complained of his stomach feeling bad. His fever never got to the 100 mark, but stayed in the mid 99 range most of the day. By late that night the fever seemed to have subsided so Joe was able to play for both services at PGUMC on Sunday and then accompany TGMC for their last concert of the year. Although he was able to get through it all, he was very tired and by Sunday evening his fever had returned and his stomach was once again hurting. Monday morning his fever was gone, but he was still experiencing stomach issues. This continued until late in the day on Tuesday when Joe started describing it as just a slight discomfort. Of course, we don't know why his stomach was hurting: tumor issues? hernia issues? or just stomach ache? We may never know, but it was a taste of Joe feeling bad for several days in a row.
I think one of the reasons why we took the news last Thursday so badly is that we've grown accustomed to Joe having good scans, feeling well most of the time and probably were just in a little complacent. The news was a dose of reality, at least for me.

But the week hasn't been all stressful and gloomy. On Tuesday, Joe took Dolly to the kitty spa. She got to spend 4 hours being bathed and pampered. She came out all fluffy and smelling good.

Thank you to everyone for the outpouring of love this past week. It has been a hard time for Joe and me but knowing so many people care so deeply is a great comfort

CT results

The CT scan results are in and they are not what we were hoping for. The tumor showed a 10% growth. What this means: possibly changing Joe's chemo regiment. The change would be to chemo that could be more debilitating with more severe side effects. We don't have to make the decision today so Joe will have his normal chemo treatment today and then next week we will meet with the doctors again with a decision. If he stays on the same treatment, we would have another scan in 6 weeks to check for further growth. If there is growth, then the decision would basically be a no brainer: change to the other treatment. If no growth, he could stay on the current treatment. The other option is at next weeks doctors appointment is we just make the decision to go ahead and change treatments. We have a week to think about it. I want to thank both Dr. Zafar and Leigh Howard for the extra time spent with us this morning. They were both still very positive and optimistic about the treatment and Joes health in general. It helped a lot and meant a lot to both of us. It was a long night and now will be a long week. Maybe we will spend more time in the "quiet room" at Duke this morning.

Today's Scan and Tomorrow's Results

Joe had his scan this morning at 8:30am after having his lab work an hour earlier. Everything went a little ahead of time. I couldn't be there for the scan this morning, but I did Facetime with him awhile after he had changed into his cute little hospital gown. I should have saved a photo of that, but I'm trying to be good.

We won't have the results from his scan until tomorrow morning when we have an 8:20am appointment with Dr. Zafar or Leigh Howard. It will be a long evening. As I've said before however, at least it is only 1 day instead of the 4 days like back in April.

The highlight of the day however, was when Joe sent me the following photo at work. I have seen photos of him from high school before in his Roanoke Rapids High School band uniform, but this one takes the cake. Please read the caption about the "rock band". How many "rock bands" have you seen wearing marching band uniforms? Don't you just know they could really jam!!!

As soon as you finish laughing and get control of yourselves, I will continue. How could such a high school nerd turn into the cool, suave gentleman that is Joe Lupton today? Ok, ok....now I'm laughing. We all know that Joe is very much still quite the nerd. But we love him!

Thank you for all your prayers and support. We love and appreciate all of you. As soon as we are out of the doctor tomorrow I will update the site. Talk to you tomorrow. Thank you.

5/24/12 Lab, Doctor & Chemo Visit at Duke

Good news this morning.  No fever for Joe.  Had his initial labs before 7:20am and saw the doctor (both Leigh Howard and Dr. Zafar) at 8:20am and were done with that part by 9am.  The doctor ordered additional lab work to be done before his chemo appointment.  Some more extensive labs to maybe see if they can find a reason for the fevers.  But, apparently there is some confusion at the lab so Joe is still waiting (an hour now) for the blood to be drawn.   But he will have his chemo as scheduled, if he ever gets up to the 4th floor for them.  Which he did at 10:30am.

P.S. Joe was irritated that I didn't mention the fact that he got a bed today for his chemo infusion instead of a chair. The chairs were all full so he got to lay down. A first for him. My humblest apologies for my neglect in not reporting this earth shattering news of his.


Have a great day and thanks for caring!

First Round of March Chemo!

Today was the first doctors/chemo appointment of March for Joe.  Since the new Duke Cancer Center is now open, todays appointment also included a feast for the eyes of the beautiful new facility.  But before I get to that, here's what the doctor had to say.  Joe's counts were very good today.  The "quasi" anemia that Joe had been starting to develop seems to have abated somewhat so that was good news as well.  Joe got to see Dr. Zafar and Leigh Howard today so that was a double treat.  His appointment for labs was for 7:20 but by 7:17 he was already done with the lab portion and down in the food court for his breakfast.  The reason why it was so quick is that many of the doctors have already moved to the new Duke Cancer Center.  The GI doctors won't move for another couple of weeks so that left the old clinic rather empty, not that we are complaining.  Chemo moves next week as well as the lab for blood work.  I "facetimed" in for this appointment since I will be missing part of the day next Thursday for a required CE class that I have to take to keep my real estate license current.  Missing part of 2 Thursdays in a row would not be a good thing.  But I got to ask my questions, reminded him about the refills on the meds needed and basically accomplished what I needed to do or know from the comfort of my office.

But now for the good stuff.  Wait until you see this beautiful new facility.  It has everything from a boutique for cancer patient supplies, hair & makeup salon to make those dealing with cancer feel better about how that look, mood/reflection room with really cool blue ambient light, a gorgeous lobby and waiting rooms, a grand piano where a pianist sets a calming feel for everything, and many more stunning features.  What I like most is the wood work throughout that mimics the feel of Duke Chapel's spirals and architecture.  The outside which is mostly glass does not adequately convey the beauty that is inside (but the outside is very striking mind you).

Ok, so here come the photos.  Please indulge me, we've been watching this building go up for the last 17+ months and it's finally done.

The front of the new Duke Cancer Center

Obviously, just a sign inside the lobby.

The lobby of the Duke Cancer Center(note long fire place on the right)

The aforementioned fireplace in the lobby.



This is my favorite architectural feature.  The wood spiral like arches throughout that mimic Duke Chapel and Duke's campus.

The spiral at the bottom of the stairs.  I'm sure it has some significance, but haven't figured that out.

The grand piano is right next to the spiral.  No one playing this morning.  You just know Joe wanted to go have a sit.  He should have!

The cancer center has it's own cafe so you don't have to go to the Duke Clinic food court if you don't want to for something to eat (but the food court has a bigger variety)

The cafe itself.  Nice bright colors and tons of light.

The registration area/waiting area for lab work.

Need to sit in quiet and relect, they have a beautiful place for that too!

In need of some fresh air on a beautiful day.  There is plenty of outdoor space to catch some rays, relax or have a meal.

Joe attempted a short video of the fireplace.  I emphasize SHORT.  But you get the idea.

The facility is beautiful, has state of the art equipment, the same caring staff and although we would prefer not to have to be making the trips to the clinic at all, if we have too, the new Duke Cancer Center definitely offers an atmosphere where you can get excellent care in gorgeous surroundings.  A big THUMBS UP from Joe and Jeff.

Thank you to everyone for your continued prayers and words of support.  We owe everyone so much in the way of thank you.

Chemo: Round 2 (Ding, Ding)

This week was the 2nd of this 3-week cycle at Duke. Although we made good time, this week was no new record. Joe didn't get out of chemo until 11:00 am. We did get to see both Dr. Zafar and Leigh Howard, which is always a good thing. Joe seems to be doing well enough that for now, he'll only see the doctor one time per chemo cycle. The other two appointments will just be for labs and then his chemo infusion. No co-pays for those visits...YAY!

It hardly seems possible but it's almost time for Joe's next CT Scan. Two months fly by when you're having fun, right? The next scan is scheduled for January 31st. We won't know the results until his February 2nd appointment. We just love waiting for the results (if you don't hear the sarcasm in that, read it again and listen carefully).

All in all, a good week except for my cold which is now entering its 5th week. Maybe by next Christmas I'll be well! We also set a record this year by getting the Christmas decorations down the earliest ever. Joe didn't get to have them still up on his birthday once again.

Thank you for the continued prayers and good wishes. We appreciate each and every one.

Early Day at Duke and Jeff has a Week Off!

Late to bed, early to rise makes for a massive need for coffee.  I napped a lot Sunday afternoon and then last night found it difficult to sleep.  Not sure if one had anything to do with the other but it definitely made for a sluggish morning getting to Joe's 7:30am appointment at Duke Oncology.  But we made it with 10 minutes to spare.  Plenty of time for me to go get my coffee and Joe's large diet lemonade from the food court.   Blood was drawn promptly at 7:30 and now we wait for the call back to the exam room to see Leigh Howard or Dr. Zafar.  I'm thinking Leigh, but regardless I hope we are running on time.

From here we have a trip to King's Sandwich shop (Joes choice) but I'm pulling for the Atrium Cafe at Duke Hospital.  Best chicken strips ever!  Then we plan various trips that could include Costco, Pleasant Grove UMC, Target, DPAC, Honeybaked Ham store, Harris Teeter and a couples of other places that are slipping my mind.  We probably won't make it home until dark at this point.

Been awhile since I've been to chemo with Joe except by FaceTime.  Not that I've missed it mind you but this week Joe won't have much of a chance to be away from me.....ahhhhhh togetherness.

We have the interfaith Thanksgiving service at PGUMC on Tuesday night and then we leave Wednesday morning for 4 days at Myrtle Beach. A nice quiet Thanksgiving filled with catching up with movies (Breaking Dawn, Descendents, Moneyball, etc). But right now it's 8:24 and we are still in waiting room...waiting...hence the name of the room I guess.

Not a big crowd here yet so still hopeful of being on time, although buzzers are going off all around us, just not Joe's.  We did get back to the exam room around 8:45 and got to see both Leigh and Dr. Zafar!   His lab work was within normal ranges or at least what they expect it to be (he's a little anemic) and much to his dismay, he's gained 4 more pounds.  We didn't quite make it up to chemo on time so we had more than an hour wait.  But look how cute Joe looks with all those tubes plugged into him :)

We were out of there by noon, but didn't get home until 3:45pm after running all the errands.  But since it was still daylight, I took the opportunity to rake up more leaves that have fallen from the trees in the front yard since Saturday.  I'm sure we will have to rake a couple of more times before all is said and done.

All in all a very nice day even if 5 hours were spent at the Duke Clinics.  Thank you to everyone for your continued prayers and good thoughts.  If anyone is free on Tuesday evening, please join us at Pleasant Grove United Methodist Church at 7:30pm for the interfaith Thanksgiving service.  Joe and I have so much to be thankful for this year.