Saturday, December 28, 2013

So Long 2013

Ever since I began the blog in 2010, I've done a New Year's post saying good-bye to the outgoing year.  2010 was a good riddance message, 2011 was a thank you for a pretty good year, 2012 was a mixed bag; some good, some bad.  Had I known that less than two weeks later my world would be irrevocably changed, I might have had a different message.  But maybe I would have just lived the next 13 days better or have let events play out as they did.  I have no regrets about the time I spent with Joe. We were together every possible moment and I loved every second of the time we had.

Many things describe me at this point: older, thinner, wiser?, naive?, lonelier, skeptical, negative, positive, jaded, tired, hesitant, headstrong, opinionated, and on and on.  Full of contradictions.  I've learned a lot over the last 38 months.  A lot about my family, my friends, and myself.  A lot about pancreatic cancer, our healthcare system, and Duke University Hospital.  A lot about society, equal rights, and homophobia.  A lot about faith, generosity, and love.  The last 12 months I've learned a lot about loss, grief, and solitude.  The tears that I have shed since October 2010 could fill a large swimming pool.  However, most of those tears have been shed daily since January 13, 2013.  Although 2013 has been so far the worst year of my life, there have been people who have made a huge difference.  Were it not for them, I don't know if I would have been able to sit here today typing.  The days following Joe's death, my friends and family gathered around me.  My sister and niece stayed with me, Jill & Mark stayed with me, Lara stayed with me.  My PGUMC family circled around filling my home with sounds, food and loving friendship.  My Home Team family clung to me and gave me time to mourn.  Our caring professionals at the Duke Cancer Center and Duke Hospital reached out to me and helped hold me up.  The DCC gave me grief counseling.  I mean they literally gave it to me.   There was never a cost.  I was their patient as much as Joe had been.  When I visited the 9th floor at Duke Hospital the first time following Joe's death, I was greeted with smiles, tears, and words of condolence and care.  For the two+ years that Joe was hospitalized off and on, the nurses, doctors, and staff of the 9300 wing treated me with the utmost respect and warmth.  After his death, they continued to do so. 

During 2013, some people have gone above and beyond what I ever could have expected.  Friends have consistently welcomed me into their homes and treated me like family.  I've been able to spend mealtime and party time with some of the most wonderful children our Lord has ever seen fit to put on this earth.  Meals, along with giggles, smiles, kisses and sugar from Emmie, Asher, Cleona, Jake and Izzie have been wonderful. (A big thank you to the parents of those beautiful kids).  The Minnick family has included me in birthday dinners, family get-togethers and lots and lots of fun.  Jay, Allana, Jonathan, Micah, Harper and Molly are all so very, very special to me.  I've also learned that some people just have more patience and faith in me than I deserve.  Lucinda and Jay have both had to listen to me so many times this past year moan, complain, cry and well, cry some more.  Why either of you have put up with it is a testament to what good people you are.

Unfortunately, along with the support from so many, there have been disappointments from others.  But that is just a part of life.  Some people surprise you with how much they go above and beyond while others let you down.  Were the shoes on the other foot, I don't know which category I would fall into.  During 2013 while I learned about myself, I was pleasantly surprised at times and woefully disappointed at other times.  I started off with constantly second guessing each and every decision I needed to make with the question, "What would Joe want me to do?".  However, all that did was drive me crazy and keep me from making any decisions.  Finally by early summer I had to stop asking "What would Joe want?" and replace it with "What do I want or what do I need".  I still probably made all the wrong decisions, but at least I made them for the right reasons. 

There are still times, many times when I find myself almost coma like pondering how this all happened.  I know the why in my head, but I keep pausing, grasping for some way to make my heart and soul understand the how.  How can such an enormous personality, such a gentle giant, such a good man be here one minute and then not be here?  It's been almost a year and I haven't been able to get my mind around that.  Sometimes the thought just stops me cold.  I look at a photo and I remember the circumstances portrayed in it perfectly.  But how does that memory go from the happy moment captured on film (or digitally) to today's reality instantly?  The problem is that it doesn't.  It's in those moments of time that I can't entirely grasp the idea that Joe is actually gone.  This has been the longest year of my life but at the same time, it literally feels like it was just yesterday that he died and the day before that he was diagnosed.  If it were not for my short-acting anxiolytic benzodiazepine class of psychoactive drugs; my selective serotonin reuptake inhibitor; and my short-acting nonbenzodiazepine hypnotic of the imidazopyridine class that potentiates GABA by binding to GABAA receptors at the same location as benzodiazepines, I don't think I would be here today.  Basically, I'm a mess.



This Thanksgiving through Christmas I have been very sad but tried to put on a brave face when at all possible.  Everyone recognizes that this was my first Christmas without Joe and also know just how special Christmas was to him.  I've had family visits and Skype/FaceTime chats with friends far away.  Sadly, grieving this holiday is not unique to me.  Several close friends have experienced losses other than Joe this year.  Parents, children, relatives and close friends have left many people dear to me missing them.  I'm sure I'm not the only one who didn't quite feel the pull of the usual Christmas spirit.  I did decorate the house, but just a little.  It shouldn’t take me more than an hour to un-decorate it all.  I cried while putting it up and I’ll cry when I take it down.  This years trip to see my family on Christmas Eve didn't end the way I had hoped either.  Although I enjoyed talking and a few laughs, my smile was forced and on a couple of occasions, I could not hold back the tears.  Memories of how much fun Joe had at my family Christmas get-togethers, the silly jokes he tried to tell, and how easy it was for all of us to have such fun together proved a little too much for me and I had a bit of an emotional meltdown.  Sadly I put a damper on things by excusing myself and driving back to Durham at midnight.  The more I thought about Christmas Day, the more I realized I just didn't have the energy to pretend and plaster a fake smile on my face for hours on end.  I know I disappointed my family, but I also know they understand and forgive me.  My sister held me and cried with me.  I held onto Sara tightly and wept.  Aimee hugged me and spoke comforting words of love.  They all miss Joe and each in their own ways have found the holiday season lacking somewhat due to his absence.  On Thursday I traveled to Greenville to exchange gifts with Joe's family. Once again, the absence of Joe was a palatable feeling in the air. Hopefully next year will be just a little bit merrier and I will truthfully smile a bit more. 



2013 is on its way out.  For the first 13 days of this year I had my Joe with me.  He felt really bad each and every one of those 13 days.  It is extremely selfish of me but I would gladly relive each of those days over just to have him here to sit beside me, hold my hand, talk to me, and just tell me he loves me one more time.  I know that wouldn't really be enough for me, wouldn't really be right for me and would not be fair to him.  But rational thoughts and grief rarely go hand in hand.   For now, I'll just look at my assortment of YouTube videos that I loaded of Joe playing music, smiling that infectious smile he had and calling me "Jeffrey!" when I annoyed him.

What does 2014 hold in store for me?  Good question.  I wish I had the answer.  Actually I wish I had AN answer....any answer.  I know that on Fridays I will meet Mike and Jeff for lunch.  On Friday nights I will go to bed early and try to sleep past 7 a.m. on Saturday.  I will record Duke basketball games to avoid being a jinx and causing them to play poorly, only watching the recording if they win.  I will watch my favorite TV shows, talk to Joe during them like an insane person because I know that is one of the few drawbacks to Heaven: no Homeland, no The Good Wife, no Revenge, no Modern Family, and definitely no Teen Wolf, True Blood and Vampire Diaries!  Because of that, I know he is sneaking a peek at what I'm doing on certain TV nights.  I know that I will continue to eat well, continue to exercise (still looking for those elusive endorphins - hopefully I haven't done too much damage with weight gain during the holidays), and wake up tomorrow.  Beyond that, I don't have a real clue.  But I am open to suggestions. 

My New Year’s Wish:
May we break down boundaries, tear down walls, and build on the foundation of goodness inside each of us.  May we look past differences, gain understanding, and embrace acceptance.  May we reach out to each other rather than resist.  May we be better stewards of the earth, protecting, nurturing and replenishing the beauties of nature.  May we practice gratitude for all we have, rather than complain about our needs.  May we seek cures for the sick, help for the hungry, and love for the lonely.  May we share our talents, give our time, and teach our children.  May we hold hope for the future very tenderly in our hearts and do all we can to build for bright tomorrows.  And may we love with our whole hearts, for that’s the only way to love.

Goodbye 2013!  Hello 2014!  

Monday, December 9, 2013

It's been a long, long time.

It has been quite some time since I’ve posted here on the blog.  Since my last visible post, Thanksgiving has come and gone, my Thanksgiving trip to the island has come and gone and we are right in the middle of Advent.  Many things have transpired during this period.  Some quite nice and some not so quite nice.  As was expected, the Holiday season has brought with it quite a lot of sadness.  My trip was nice at Thanksgiving, but sad.  The approaching Christmas, with it being Joe’s “all time favorite” holiday has ushered in even more sadness.  For that reason, I decided after my trip that at least during Advent I would “go dark” with Facebook and other social media.  Just not feeling very “social”.  Even so, I did feel I needed to at least post something on the blog. 

If you noticed in the second sentence of this post, I referenced “visible post”.  What that means is that I have written a couple of posts, but they remain there in draft form and have not been published.  The reason; I wrote them to get a few things off my chest, but knew that if the general public at large read them, there would probably be hurt feelings or misunderstandings. Not that I say anything bad about anyone, or don’t tell the truth, but sometimes it is the truth that can be most hurtful.  I continue to be torn about many different topics and sometimes I just need to get it out of my head and somewhere else.  Maybe someday I will publish, but by then they will be buried deep within the website and probably never read unless someone gets ambitious and goes on a reading frenzy!

It hardly seems possible, but this Friday it will be 11 months since Joe died.  For me, it truly does feel just like yesterday.  The pain and sadness is still just as fresh as it was the day following his death.  For this Christmas, I’m just going to curl up, not over eat, keep running and working out, stay out of trouble, catch up on movies and sleep when at all possible!  Thank you for your prayers and words of encouragement. 

Vaccination date set

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